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A Doll, a Baby Doll....

HaHaHa.... I told Max that IF he is not good until Christmas, Santa would bring him a Baby Doll... so now everytime he is "naughty" I say, "Your gonna get a Baby Doll" from Santa instead of your John Deere Tractor!! So today we were getting our hair cuts and they girl asked Max what he was getting for Christmas.... he told her he was getting a Baby Doll!!! So I guess Santa will have to leave him a Baby Doll, so he won't be let down... Any Suggestions on which Baby Doll???

To be more Clear... about Max's MRI Result......

Hello, and Happy Thanksgiving Week!! So I thought I would write what the Doctor has said to me... or given me in the MRI report. As many have e-mailed me and asked me.... I guess I didn't very well explain it. Findings: No restricted diffusion is seen. The patients udnergone a left enucleation. Stable subtle stranding is noted within the intraconal fat. The Prosthesis is normally positioned. No abnormal enhancement is noted within the optic chiasm or optic tracks to suggest recurrece. No extra axial masses or collections are identified. The 4th venntricle is normal in size and is in the midline, the 3rd and lateral ventricles are normal in size, shape and configuration. The cerebral, cerebellar and brainstem parenchyma demonstrate normal signal characterisitic. No untoward areas of enhancement are identified. The dural sinuses are intact, flow void is seen within the basilar and carotid arteries at the level of the cavernous sinuses. The cavernous sinuses are grossly normal. The pituitary glad in normal in signal, as the optic chiasm. The paranasal sinuses are clear.Of note, there is a rim enhancing, T2 hyerintensity adjacent to the right sphenoid that likely represents an opacified air cell in connection with the sphenoid. Since this lesion had progressively increased in size in the comparison to multiple prior studies close follow-up with MRI is recommended in 3 months.1. Stable postoperactive changes after the left enucleation without evidence of recurrance.2. T2 hyperintense lesion within the right sphenoid, likely representing mucus within the aerated sphenoid wing. However, since this lesion had increased in size in comparison to mutiple proirs progressively, close follow-up at 3 months is recommended. Vanderbilt University Medical Center. So Thats what Max has, did I put it any clearer.... The way Miss Tara talked like was he just has Mucus build up in his sinus. She asked if he had headaches, how do you know if your 2 year old has a headache?? Anyway-- I have to go now, Max is jumping on my bed and he's gonna fall off.... No more Monkey's jumping on the bed!!

A Wonderful Beautiful Day For A Parade.....

OK, So if my laptop wasn't such a "guy" and stop being so SLOWWWW I would upload some pictures on here of the Christmas Parade. Max was so much fun. We took him to the Parade today and he had fun. We went with Melissa, Chris, Kaitlynn and Zack. And Papa and Nany and Mama. They all thought Max would get scared at the Parade with the Sirens Blowing and big crowds.... Heck NO He loved it. He loves the Fire Engines, and Police Cars, and most of all the Tractors!!! And they all thaough he would get scared of Santa... after the Parade we walked up to the Square and just walked around. Well, I seen Santa walking around... Soooooo I asked Max if who that was, and Max said.... "ho ho ho" and "tractor". I asked Santa if he would mind posing for a picture with Max and he said "Not at all" so I lifted Max out of the Stroller and into Santa's Arms, I was expecting Max to cry, as most 2 year olds do! NOT Max, he sat right up there and just looked around, I have pictures but they are really hard to upload on here, thats why there is only 1 picture! hahaha
So anyway, lately I have been teasing Max about being good for Santa. And I tell Max he is goin to get a "baby doll" if he is NOT nice! And he usually says "tractor" But today when I did it, Max said he WAS gettin a "baby doll'' from Santa. ohhh gosh.... back to Tractors. You can ask him what he is getting from Santa, and sometimes he will say "baby doll" or "tractor" its so fun! I love his little giggle and how he raises him eyebrows when he shakes his head "yes". He gets that from his daddy. We, Max and I are goin to get our haircut on Tuesday. I thought we might look nice with haircuts for Thanksgiving. I'm getting shaggy and Max, I missed a whole big spot on his top when I cut it last time, so I think I just might have to not do it anymore, so it looks nice. hahaha Well, I am just ramblin now, I'm tired and so I must go to bed now... night night soon I'll be snoring.......

The Hockey Game.... We WON!!!

Ok, so I wouldn't think I would like Hockey.... But being married to a HOCKEY NUT... its kinda hard not to like it. I do like it!! And the first year I lived in Tennessee my fiance` had Season Tickets. And we went to the Games. But as the years went by, and money was tight, we only went to a few games a year, and now.... We go to games monthly. Courtesy of our "friend" who works with the Nasvhille Predators. We have AWESOME Seats, 1o rows back from the ICE!! WHOO HOO.... but its so cold! But I love it, and little Max loves it too. He thinks that Hockey is the BEST, he started likeing it at 4 months old, we would sit him in front of the TV and he would watch it. So when we got the chance to take him to a Hockey Game, we went!! Awesome! But I had told our "friend" we wanted some tickets to a game and to see what she could do. Mind you..... these tickets are DONATED from Our Nashville Predators Players. So she don't "actually" give them to us, I'm to thankful for the Guys on the ICE for doing this, it is such a happy feeling to look over and see Max Smiling to BIG because there are guys out there hitting the puck and falling down, and having a good time while we watch them. IF they could see Max's BIG Smile. I am thankful for them and giving Max a oppurtunity to see them. So anyway-- Nashville did win 4-3 against San Jose Sharks!

A few weeks ago at the "Hockey Fights Cancer" Game we went to, I wanted to stop by the Auction table and buy a "Cancer Braclet" you know the "arm bands or braclets in a specific color" like the Lance Armstrong Braclets, anyway I wanted one of them, but I didn't get the chance to get one. So this last Hockey game I went to blow my nose and the bathroom is just right behind the auction table so I strolled by the table and asked how much the braclets were, and the Man said they were $1.00 so I told him I wanted one because my little 2 year old baby boy HAD Cancer when he was 8 months old. So he just handed me a braclet.... and Smiled at me! And I tried to give him the dollar and he wouldn't take it. I don't want to "faunt" that Max had Cancer, but I don't and won't keep it a secret. But I won't be pitty to someone either, like some people are, they let their childs Cancer get to their heads and will take advantage of people. I just think that is so sad. But I will not, if you want to help thats fine, but I will not burden anyone, and will not be "asking" anyone for anything! Thats just me!

So, anyway... I'm tired and I must go to bed, Max had Speech Therapy in the Morning.

MRI Results....

Well, The MRI results are good, and there is NO recurrance of Cancer.... BUT... There is a spot in Max's Nasal Cavity above his Right Eye (The GOOD Eye). So they think it is a Mucus Blockage and it has got bigger since the last MRI in August 09. SO that is where we stand now. There was and still is a possibility that the Chemotherapy "could" contribute to secondary Cancer, Bone Cancer or some other sort. That was the only Possibility we had, but they seem to think that this is all it is! I was so HAPPY to hear that the MRI Results were clean, but that don't mean we are out of the woods yet, we still have to get past the 4 1/2 year mark. So we have been sent papers on the Survivorship Program at Vanderbilt.

Anyway, we got tickets to the Predators Game tomarrow night. My "person" got us tickets to the game, and she usually gets us GREAT Seats too. GOOOO Predators!! Well, I am tired and I'm goin to bed now... Good Night!!

P.S.
I am trying to take Max off the Bottle at night, which isn't working. But he is off his binkie now!!

Monday and A Doctor Visit.....

OK, so its Monday Morning at 6:19am! Max has a Appointment with his Oncologist Dr. Kuttesch at Vanderbilt Childrens Hospital, at 1:00pm today. Just to get the results of last Thursday's MRI. Which we think that it will be a clean MRI and he will now be able to go every 6 months for MRI's now, but the older he gets that harder it will be. Man.... did we have a hard time getting him a IV in!! Whooaa....... They had to give him Versaid, which is a nasal mist to calm him down, that worked for a bit, but then he was bad. LOL If I could have did it for him I would have! Poor little guy!!
So they finally got the IV in him hand, but by the time we got to the MRI room he had pulled it loose from his hand and they couldn't give him meds through it. So there Max was laying on the MRI table and with out a IV in, so they ended up just IVing him in his foot and then taping it inplace while he was out!! So next time they told us to make sure he is goin to get a MRI to get him to come on Monday... they can Gas him. He has had Gas one time to be put to sleep, that was the time they could NOT find a vein... and they stuck him like 17 times! Thank Goodness for Pedia-Ports!!
Anyway, Max's Papa had a Doc Appointment this moring also, so today to Doc Day!! LOL
So, anyway... I shall post later today on Max's MRI results and Doc Appointments. We have decided on a name for the Puppy.... well on a few names for the puppy.... Belle, J.D., (John Deere) and Gnash (Predators Mascot). So I don't know just yet! I have to go now, that danged puppy is howling....

MRI's.....

Ok, so the Axniety has set in once again.... I hate these Freakin MRI's Max has to have every 3 months.... but IF (and WE think that...) this MRI is CLEAN, Max can have a MRI every 6 months.... How sweet is that!!!! Thats the thing I want to hear.... Max is CANCER FREE!!! I'll be happy when he goes for his 1 year MRI's.
So anyway-- we have to be at Vanderbilt Childrens Hospital at 7:00am or at least by 7:00am. He goes for his MRI at 8:00am and it should take a hour to a hour and a half. So its not that bad. I hope he does well with his IV Insert. He's not the best "stick" and he pulls it out half the time. With his Pedia-port is was SOOOOO easy! But now it has been almost a year since he has had his Pedia-port removed.... and so now he just has to have a "stick" and he has my Veins... Not good at all. So anyway--- Max was goin to bed at 7:00 tonight, and he woke up at about 8:15... so it will be at least Midnight when we get to bed. So its goin to be a rough night!! Boo!!
I will NOT have a ANY Results of Max's MRI's until Monday, but when I know I will let yall know. Max has a Doctors Appointment with Dr. Kuttesch on Monday. And then we start a BUSY week. Everyday we are going to be going somewhere... Monday- Max's Doctor Appointment, Tuesday- Max's LAST Feeding Therapy, Wednesday..... My Annual OB/GYN Appointment, (NO I'm NOT Pregnant!!!) And Thursday- Max's Speech Therapy, and Friday- Max's Feeding Therapy..... WOW What a Week!!!


Updates to follow... and we STILL have not named our Puppy!! Any Suggestions??

A NEW PUPPY!!

Today started out by going to Feeding Therapy in Nashville, (we have one more Therapy Session to go to... Yayy!!) I had called on a Beagle Puppy Yesterday, and they were in Springfield. So I told the lady I would stop by and see them, because we wanted a Puppy of some sort, and we have read that Beagles are good with Children.
So we got done at BWC and on our way back to Springfield. We stopped at Walmart to get Contact Solution for me and I just had to have a Dt. Coke!!! I was thirsty! So then we stopped by where Max's Nana used to work to visit them until after 4:00pm, we visited with Nana and MaryNell and Leonard. Then we went off to see The Beagle Puppies.
Ohh they were sooo cute!! I wanted all of them. But they were selling them for $65.00.... Well, we looked at them and Max played with them. And finally the Man said, "I have the "runt'' back here if you want to look at it". So I said "Sure!" He brought it out and she was soo cute, and Max loved it right away.... so I proceeded to them the Man and his Wife about Max and his Cancer..... log story short.... He just gave us the "runt" free!!! FREE!!!! So, Me and Max are the Proud owners of a Female Beagle Puppy... She is sooo adorable!! We just love her! But she does NOT have a name yet! We don't know what to call her, I thought of "Southern Belle" and calling her "Belle" So I don't know yet. So that was our day! How was your day??

Thank Goodness the week is over.....

Okie Dokie---

So its Friday Night and I just put little/big Max to bed. And now Jody is down the hall playing XBox- NHL Hockey! So all is good! So we have a Speech Evaluation today for Max, since he was diagnosed with Cancer LAST Year.... He had some issues on Speech and Eating. So we have had him in both of them since June 09. He has been doing great in both, so we decided to do anthor Speech Therapy. So he goes on Fridays, he has been saying a few random words but, not rattling off sentences like he should be. He don't put too words together, he only does "ish-bowl" for Fish Bowl. He calls a Transfer Truck a "Bye-Bye" and "Uff-Uff" for a dog, but he can say "dog'' when he wants to. I don't know what it is. hahaha

So as for PICTURES on here.... I asked for help from my Facebook Friends, but NOBODY wanted to help me except my cousin Kim. So I still don't know what I am doin and how to upload Pictures!!!! So hopefully, I will follow her instructions and "maybe" upload some Pictures on here. There's so many and my poor Lap-top is so old and SLOW that I don't know if I can upload them. hahaha So we will see keep checking back now and then.... I wonder if anyone really does ready my Blog???? I bet not, no one never leaves a Comment or anything! Oh well!!


See Yall next time....

Uploading Pictures.......... NO!!

Ok, HI! Umm, I tried to upload some pictures last night.... so how my Gadgets didn't take or I posted my pictures to somewhere else on the web.... But they did't show up on my blogspot page! So I will try to attempt to do it again, when I have more time when Max goes to sleep! So in the mean time, just beare with me... this has the shortest blog ever! See ya next time!!

Well, its November!! What a Month to be "THANKFUL" for Everything in my life!! I am so LUCKY to have Max in my life and I'm LUCKY to be his Mama. He is such a joy to have!! He is growing so fast, and is so cute. And so lovable! I totally love it! We have a few more weeks for Feeding Therapy before going to Once a month. And Max still has Miss Carter come Once a week to help with Speech. Then we go to another Speech Therapy in Portland on Fridays.
I called today to see if Max's Dr. Wilkins had sent us a referal to a Allergy Specialist yet, and the appointment has been set up for January 14, 2010. And also i called on a Dentist Appointment for Max.... Dec 4, 2009. That should be fun!! I'm not looking forward to that, but it will be good to get him started on that habit of brushing his teeth, he does it already but, I just want to make sure that he is doing it better.
Not too much has been going on, its nice weather out there. Fall Weather.... its great!! We are suppost to have "nice" weather this week. So far to good!! :) So I guess, I will update in a few days when something new happends.



Max and Mama XOXOXO