Actually Max got a Wish, from The Make-a-Wish Foundation of Middle Tennessee. I am so happy for him!! We had to wait until he was 2 1/2 yrs old to request a "Wish". So now that he is "two-half" thats what he says when you ask him how old he is. LOL He is so stinking cute! I just love him to death!! So anyway- We got a letter from the MAW Foundation last Tuesday, comfirming his approval for a Wish, and then on Wednesday we got a call from the MAW Foundation, wanting to talk to us and get aquainted with the parents, and then they will be calling soon to set up a meeting and get this Special Wish to Max!! We are thinking Disneyworld!! OR Moline, Ill. Where the John Deere Tractors are made! Who wants to go to Illinois??? I don't. I want to go to Florida to Disneyworld and do fun things there.... Max has said he wants to go to Disney... to see Mick's Home, (Mickey Mouse's House). So we will see, I know he wil have fun wherever we go. So I will let yall know what we get to do, as soon as I know more about it and meet with them.
Friday, March 26, 2010
Monday, February 22, 2010
Yeah its Monday!!
I have no idea why I am blogging, I have nothing interesting to say, except.... I am starting to feel better with my Blood Sugar under control and my Thyroid Meds are helping, and I'm starting to get over Sinus issues!! So ohh yeah.... Max is working on Potty Training... He tells us when he has to go "pee/poop". It's so cute, and he WILL tell us wheather its just a little poop or a little pee, he will tell us when he has to go to the bathroom. So he is getting the hang of it! And we did tell him, IF he can tell us ALL this week when he has to go "pee/poop" on the BIG toilet.... then his daddy told him he would take Max to the John Deere Store to go get a Tractor that Max picked out. So we will see what happends this week.
Other than that, Nothing much is happening here. But then again its just Monday Morning at 10:31am and I'm sure more interesting things will come.......
Other than that, Nothing much is happening here. But then again its just Monday Morning at 10:31am and I'm sure more interesting things will come.......
Tuesday, February 16, 2010
MRI Results!!!
Great News Everyone!!! Max is clear of Cancer.......... and the "spot" is just a spot. Here is his MRI Results as they gave them to me. I have no idea what any of this means... I am medically inclinded!!
INDICATIONS: OFF THERAPY RETINOBLASTOMA DZ EVAL
Comparison: 11/12/09.
Technique: Multiplanar, Multisequence MRI of the brain was performed including post contrast evaluation after the administration of 4ml of Magnevist. Anesthesia provided sedation.
FINDINGS:
No restricted diffusion is seen. The patient has undergone a prior left enucleation. The prosthesis is normally positioned. No abnormal enhancement is noted within the optic chiasm or optic tracks to suggest recurrence.
There is no evidence of intracranial injury. Gray and white matter demonstrate normal signal characteristics. The sellar, suprasellar and pineal regions appear normal. There is no abnormal enhancement. The dural sinuses are intact. Flow voids appear normal. The paranasal sinuses are clear.
A rim enhancing, T2 hyperintensity adjacent to the right sphenoid is stable from the prior exam. Again, this likely represents an opacified air cell in connection with the sphenoid.
IMPRESSION:
1. Stable postoperative changes after left enucleation without evidence of recurrence.
2. T2 hyperintense lesion within the right sphenoid, likely representing mucus within an aerated sphenoid wing. This is unchanged from the most recent examination.
Dr. Creasy reviewed the images and provided the interpretation.
Comparison: 11/12/09.
Technique: Multiplanar, Multisequence MRI of the brain was performed including post contrast evaluation after the administration of 4ml of Magnevist. Anesthesia provided sedation.
FINDINGS:
No restricted diffusion is seen. The patient has undergone a prior left enucleation. The prosthesis is normally positioned. No abnormal enhancement is noted within the optic chiasm or optic tracks to suggest recurrence.
There is no evidence of intracranial injury. Gray and white matter demonstrate normal signal characteristics. The sellar, suprasellar and pineal regions appear normal. There is no abnormal enhancement. The dural sinuses are intact. Flow voids appear normal. The paranasal sinuses are clear.
A rim enhancing, T2 hyperintensity adjacent to the right sphenoid is stable from the prior exam. Again, this likely represents an opacified air cell in connection with the sphenoid.
IMPRESSION:
1. Stable postoperative changes after left enucleation without evidence of recurrence.
2. T2 hyperintense lesion within the right sphenoid, likely representing mucus within an aerated sphenoid wing. This is unchanged from the most recent examination.
Dr. Creasy reviewed the images and provided the interpretation.
But those SWEET words... Max has NO indication of Cancer anywhere! Are the best words ever!! We were worried about the "spot" but now that we know it is just a spot its ok, and it a BIG sigh a relief!! Now the only thing I worry about it makin something for Supper!! Hahaha
Potty Training is going ok, if we make it there on time!! Sometimes we don't, sometimes we do! Thats just the way it goes!! Have a Happy Day!! .)
Tuesday, February 2, 2010
Snow BABY!!!
Yeah, so we got some Snow, about 6 inches of SNOW!! WHITE FLUFFY SNOW..... for a few moments I thought I was back in Utah!! Minus the Mountains and stuff! But the BIG Snow came on Friday after lunchtime. And it SNOWED all day long and all night long. I could NOT believe it that it SNOWED 6 inches!! LOL
But on Saturday, it was still Snowing. And Melissa and Chris and Zack and Kait and Troy and Tammy wanted to come out to our house and play in the SNOW on Sunday morning. They got here about 10:45am. Off we went to slide down Lamont Road!!! LOL OMG I have never had so much fun with Max. He was NOT scared at all. He rode up Lamont Road with Uncle Troy and then went down the Lamont Road with him, then Max went down Lamont Rd with Kait, Then he went with me and we crashed... we ran into a Snow Bank! It was so fun.... we laughed and laughed, and we got SNOW in our faces. We had such a blast!! Then we went in the house and had Baked Spaghetti and Beef Soup, Corn Bread.... YUMMY!!! Then everyone left for the night. And again, Robertson County Schools was closed. Because of the SNOW!!!
So then Monday came and went, and Today is Ground Hog day... and he seen his Shadow.... 6 more weeks of Winter!!! ohh poohy!!!
But on Saturday, it was still Snowing. And Melissa and Chris and Zack and Kait and Troy and Tammy wanted to come out to our house and play in the SNOW on Sunday morning. They got here about 10:45am. Off we went to slide down Lamont Road!!! LOL OMG I have never had so much fun with Max. He was NOT scared at all. He rode up Lamont Road with Uncle Troy and then went down the Lamont Road with him, then Max went down Lamont Rd with Kait, Then he went with me and we crashed... we ran into a Snow Bank! It was so fun.... we laughed and laughed, and we got SNOW in our faces. We had such a blast!! Then we went in the house and had Baked Spaghetti and Beef Soup, Corn Bread.... YUMMY!!! Then everyone left for the night. And again, Robertson County Schools was closed. Because of the SNOW!!!
So then Monday came and went, and Today is Ground Hog day... and he seen his Shadow.... 6 more weeks of Winter!!! ohh poohy!!!
Friday, January 29, 2010
Snow in Tennessee..... Ummm YES!!!
Ok, so yeah, it does Snow in Tennessee.... it all started out with a Winter Storm Warning yesterday and they said it was suppost to start last night, Nope we didn't wake up to 10 inches on Snow like they said we would. We got it ALL today after lunchtime. It started out flurrys and then came a bunch of snow, and it hasn't stopped yet! I am so excited that it has snowed. They have been talking about it Snowing for days now.
Max is excited for Snow too. He runs to the front door and then the back door and says, "nooo nooo" for SNOW!! He's such a cute little dude. I loves him so much. So anyway.... ALL of Tennessee has shut down due to the Winter Storm Warning, there was No School today, People were getting off work early, My husband didn't go to work this morning. Max had a appointment with his Speech/School Teacher this morning and I called her to see if she was still goin to have it and she said Yes, everyone was telling me that they would cancel it. But they didn't, I'm glad it didn't start Snowing until after we got home from his School.
Right now, it is still Snowing like a Mother out there!! Yayyy!!!
Max is excited for Snow too. He runs to the front door and then the back door and says, "nooo nooo" for SNOW!! He's such a cute little dude. I loves him so much. So anyway.... ALL of Tennessee has shut down due to the Winter Storm Warning, there was No School today, People were getting off work early, My husband didn't go to work this morning. Max had a appointment with his Speech/School Teacher this morning and I called her to see if she was still goin to have it and she said Yes, everyone was telling me that they would cancel it. But they didn't, I'm glad it didn't start Snowing until after we got home from his School.
Right now, it is still Snowing like a Mother out there!! Yayyy!!!
Thursday, January 28, 2010
Umm, Yeah - No!!
Umm, Yeah - No! That is Max's FAVORITE words to say right now, I don't know why. LOL very funny, I guess its "kinda - sorta" for him! He is slowly talking more and more, he is funny. He went to the Audiologist today and had his hearing checked and he is where he should be for those who have had Chemo damage their hearing. So he is right on track, and we don't have to go back for a year!! Yayyy!!!
So now all we have to worry about his appointment at the PATCH Clinic, on the Feb 9, 2010 and his next MRI on Feb 12, 2010. Hopefully they will find out what that "spot" is above his right eye, I am hoping and Praying its just what they said it it... "mucus"!! So hope annd pray with us also.
So thats about what all is goin on here - except we are suppost to get a BIG Snow Storm this weekend. We will see!! If there is a "mention" of Snow.... All of Tennessee Shuts down, mainly because they don't have the trucks and plows and stuff to keep the roads clean! hahaha
SO Until next time.... Everyone stay safe and warm!!
So now all we have to worry about his appointment at the PATCH Clinic, on the Feb 9, 2010 and his next MRI on Feb 12, 2010. Hopefully they will find out what that "spot" is above his right eye, I am hoping and Praying its just what they said it it... "mucus"!! So hope annd pray with us also.
So thats about what all is goin on here - except we are suppost to get a BIG Snow Storm this weekend. We will see!! If there is a "mention" of Snow.... All of Tennessee Shuts down, mainly because they don't have the trucks and plows and stuff to keep the roads clean! hahaha
SO Until next time.... Everyone stay safe and warm!!
Thursday, January 14, 2010
OFF THE BOTTLE!!!
Ok So... Tonight is # 3 Night WITHOUT the Bottle for Max-a-moo.... I so didn't want to do this, not this soon. My little Boy is growinng up too fast! But he is doing good without asking for it. He just tells me that "Ho" has his bottles.... "Ho" is Ho-Ho, aka Santa Claus. LOL At Christmas we told Max that Santa had to take his Bottles and give them to other little boys and girls who didn't have bottles. SO thats where he thinks his bottles have gone!
SO I guess, thats that! He just has a Sippy Cup with Milk as he is going to bed! Ohh Joy! Now we just have to work on Potty Training!! That I think will be easy, since he is already trying to tell us that he has to go "PEE" and "POOP"!!! And he actually goes "Pee and Poop" on the big toilet!
Anyway, things are going good with Max's Therapy's, His Alleregy Test came back ALL NEGATIVE!! Max is NOT Allergic to anything!! So that is a BIG Relief on me, he can now eat EGGS and Wheat, and Dairy, and Peanuts! And Max is NOT Allergic to Dust Mites, Cats or Dogs. SO he can run and play with the Dogs in the house, as he already has, and Max just LOVES his puppy J.D. Max runs around saying, "Chase, Chase" meaning he wants J.D. to "Chase" him around and she usually does!! Max just giggles and giggles when she "Chases".
So Until Next time! XOXO
Wednesday, January 6, 2010
Ohh it will be ok....
Well, our New Years was great! We were in bed by 10:30pm, I stayed up until 2010. I did attempt to roll over and give my Hubby a Kiss, and he snorted and rolled over. He was alseep by 11:00pm. Happy New Year to me!! So I kissed Max's forehead instead!! LOL
Well, On Saturday we went to the Hockey Game in Nashville... All 15 of us! It was so fun! I love my SMASHVILLE Predators!!
So then on Sunday, Max had a cough and then he ran a fever of 101.2 I gave him Tylenol and fluids, and kept him pretty comfortable. As evening came, he was ok. But, he was breathing fast and his breathing was contracting with every breath he took, and he just didn't look right, so we were still concerned about his fever, so we called Vanderbilt Childrens Hosptial and they said he would be fine, that we may want him to see his Pedatrician in the morning. Max went to bed at like 8:00pm, He still had the cough, and he got coughing bad and woke up. So, he was still HOT and so we gave him some Tylenol and gave him a bottle (YES!! I know I'm a BAD BAD BAD Mommy!!!) he still has a bottle.
But he was in him Nana's arms and she was rocking him, and he threw up all over her. So I just said.... "We are goin to Vanderbilt now...." My mother-in-law kept telling me he was fine and no need to go to the Hospital because it was Midnight when we were getting ready to go, But I had my Mother's Instinct. And we went to Nashville, we got to Vanderbilt, and got checked in. And then Max got triaged and checked into a room, we spent the night in the ER with him. The Doctors examined Max, he knows how to do it, he sticks out him tounge for them to look in his mouth, he turns his head so they can look in his ears, he lifts up his shirt so they can listen to his chest and lungs and heart, and he likes the doctors. Finally, Max was diagnosed with Broncalspams. Kinda like Asthma, but he is still too young to have Asthma. He required a breathing treatment. And that did the trick, it broke up what ever he had in his chest that was making him "rattle" and cough so much.
So we were sent home with a Asthma Inhaler and a Chamber to use as needed when he coughs and wheezes, and Steriods... the Steriods make him sick. But we only have to give him them once a day for 4 days. He seems better now, and only has a random cough. We had a follow up Doctor Appointment on Tuesday, which it checked out GOOD!!
So now our next Appointment is for the Allergy Specialist on Jan 12. Wish us LUCK!!
Wednesday, December 30, 2009
Christmas Is Finally Over......
I am really peeved that I can not upload pics on here. I think when Tax time comes... I will might get me a new Laptop or Desktop!
And then maybe I could upload some more pictures!! I took alot of pics with my cell phone and I have uploaded them onto my Facebook page, so if you have me on your Facebook you will be able to see us!
Anyway-- Max got TONS of Tractors.... John Deere and Case Tractors... He woke up to lots of toys and presents. A day before Christmas... Max had opened the box that my Dad and Janell had sent us by UPS. And he opened the present.... which was a John Deere Blanket!! That was so way cool!!! Which she knows that Max likes John Deere Tractors!! So she got him a book and a shirt and a... John Deere Tractor!!! ALL John Deere stuff!! And he got the cutest little pair of PJ's that said.... "ON SANTA'S GOOD LIST" ohh so cute! And sooo NOT true!! hahaha
So Max has been talking about getting a Disc for Christmas.... a part that goes on the Tractor. IDK. So he got his Disc and a bunch of other stuff that goes on his Tractors. And he got a big Dump Truck and a big Loader... and soo much more.
We did have a Christmas Sleepover with Aunt Melissa, Uncle Chris, Kait and Zack! Uncle Troy, Aunt Tammy, Ashley and Lauren. They came to sleep over on Wednesday Night, and then got up the next morning to eat breakfast and hang out and played games and XBox and Guitar Hero... and then Aunt Marcia and Jonathon and Kyle and Amanda came to eat Christmas Supper/Snacks/Desserets.... and more!!!
Then later that day we opened Presents.... it was fun!! Max got alot of clothes and some books and toys, which was good. I got a very cool Titans Purse... (Tennessee Titans Football Team!) and a pair of Titans Earrings. And new PJ's!! And alot more from my hubby.
My hubby got his games for the XBox 360 that he wanted including "The Beatles" I honestly don't know their songs, but I did play it some.
Anyway-- I have to say that this year has been the best yet!! Dispite a few down points. But this has been the healthiest year ever, and Max's Presents to My Parents and Janell.... were centered around "Cancer-Free" Max gave his Papa Owen a Hat that I had embroidered "Papa Owen" with a little "Purple" Cancer Ribbon on the back of it. And I sent both My Mom and Janell Add-a-bead Bracelets. With their Birthstones and a Family Bead. They were all out of Cancer Ribbon Beads so I will have to send them one when I find one, I also got a Add-a-bead Bracelet also, with a Mother Bead on it.
So now we are ready to Celebrate New Years Eve.... at Uncle Troy and Aunt Tammys House. And then we are off the the Hockey Game on Jan 2nd!! Yayyyy!!!
Monday, December 21, 2009
Is it Christmas yet??
Max has a Feeding Therapy today at Bill Wilkerson Center at 1:00pm, I thought it was going to be at 11:30am, so I hurried up and got ready and everything and was waking Max up when my cell phone rang, I answered and I lost the call, so whomever called back and left a voicemail, saying that Max's appointment was at 1:00pm...... ohh geezz!!! Well I guess it will be ok, time to kill and alot of it. So I'm blogging!! I don't have a very interesting life, I mean I do, but my stupid laptop will not upload pictures so yall can't see how interesting OUR life really is. We do laugh and we laugh ALOT!! So anyway--
Ok, So I'm so excited for Christmas and for Max to see what Santa has brought him. :D So anyway, we were trying to get Max to cooperate and help clean up him toys and put things back where they belong to kinda help out. And we asked him what Santa told him to do so that Santa can bring him LOTS of Tractors.... and Santa told Max, that Max had to be 'nice'... so we always ask Max.... What did Santa say to you.
So Max does pretty good at helping out, he just needs to learn to help feed the Puppy and his Fish, So its ok. I don't mind... really I don't. I take the puppy out to go potty and poopy and she runs around outside and plays with the other dog. And she won't mind me when I call her to come in, I was chasing her all around the yard, ohh how I wish I was younger I could have caught her in one swipe, instead it took like 7 swipes and a fall down to get her! LOL She really is a cute little puppy... that silly ol' JD! Who would have know a little boy could name his girl puppy JD - after a John Deere Tractor!! LOL Too cute!
Ok so I guess I should get my stuff together and get Max ready by that time it should be about time to go.... maybe. Have a Great Monday!!
Tuesday, December 15, 2009
LOL People are just... I don't know....
Ok, So I have this friend and her little boy has some SERIOUS Health issues. Like 3-4 Seizures a day. And they don't know what is causing them. We would have had our babies like 2 weeks apart if her baby hadn't been way premature... by 2 1/2 months. He was born July 11, 07 and Max was born Sept 7, 07.
Well her and her baby have been over to Vanderbilt Childrens Hosptial since last Tuesday and they can't seem to figure out why or what is causing his Seizures. So yesterday she was updating everyone on Facebook. And I guess they have to wait for her little boy to have a seziure to see what he looks like when he is having one. Sad. So I guess they had to run some tests on him today and have a MRI done, so while they were waiting for this special little boy to have a seizure... she posted "Waiting for *Mark* to have a seziure so we can go home". Mark by the way is not his real name. But the next Facebook post was.... "Mark had a Seizure, Yayy!!!" How crude and rude is that??? This poor little innocent little boy is struggling and his Mom posts that!! I just can't get over it! I text her and gave her a "piece of my mind" even if she didn't like it. I would NEVER ever in my right mind post that! And would I EVER write "yayy" about my Special needs baby having a Seizure!! I mean I write "yayy" when we are done with a Chemo treatment or he did good on one of his procedures... its like me saying "yayy" they found another spot or cancer in him. I don't know.... it really had bothered me badly. I feel so bad for this little boy. And then on top of that.... Her and the baby's daddy are fighting and its posted all on her Facebook page... how REALLY IMATURE is that!! Calling the other names and fighting while she and her baby are in Vanderbilt... the Hosptial for really really REALLY sick kids!! Do they not have a Heart? Or are they just self-centered?? I don't get it!
So on a happier note.... We are HAPPY and We LOVE Life and Life is Good this Holiday Season!
Tuesday, December 8, 2009
Yes, it was a MONDAY!!!
Yeah it was a nightmare yesterday to take Max to get his pictures taken, me and my mother-in-law went to take Max to Olan Mills. Well we thought it would be grea to have a new picture taken for Christmas.
Yeah right!!! Great Idea!!! Well it went fine up until Max had to go back to get his taken, the lights scared him, I think that he thought he was at the Doctors, and he just got scared and cried alot, it took me awhile to get him to cooperate with me and the picture lady, I had to tell Vicki to go out of the room, because Max just wanted her. So I told her to leave. lol I felt bad, but if I didn't do it, Max just wanted her and wanted to leave.
Finally after I had to give Max a Quarter and 3 dollars.... he finally agreed to sit up there and smile like a Monster!!! How cute is that going to be!! LOL After he seen that he was NOT at the Doctors he then cooperated a little bit more. And we blew bubbles for him so he could smile. Ohh these pictures are goin to be so cute, unfortunantly we won't be able to post them on here, because of the copyright!!
Anyway-- Max has a EUA on Thursday a little procedure to see if there are any "seeds" in his right eye from the Unilateral Retinoblastoma. Last time there was NOT any and in his last MRI there was NO Cancer either. So Pray with us again that there is NO Cancer or Evidence of Disease!! Thank you very much!!
Wednesday, December 2, 2009
Well, well, well.......
Well, Happy Thanksgiving!! I thought that I would never get back on line after our Holiday! We had a great Thanksgiving, and we ate tons, and played games and then we made our Christmas lists so they knew what to get for us when they went shopping in the morning!! Then we came home and went to bed, my in-laws and my cousin-in-law went shopping at 4:00AM!! BLACK FRIDAY!!
So anyway, as Friday went on and on and on..... We had not heard from my in-laws and so my husband called them and they were at VA (Vetrans Affairs) The Hospital in Nashville for my Father-in-law he has been having some "arm pains and shortness of breathe" for about a month and a half. So they took him over there to get him checked out. We he had a Heart Attack while Shopping on Black Friday! We they didn't do anything to him until Monday and they just put a stent in him, and now he is home!! What a blessing it is to have him here with us.... That was close... too close to home!! We can't live with-out Max's Papa!!! xoxoxox
So everything is going good for now and we still need to finish our Christmas Shopping! And I am getting Max's Pictures taken soon. And just hang out with Papa... Max is getting so big and so much fun. He is talking a bit more and putting sentences together a little, mostly he uses Charades with us.... but he does talk more. Eating is a big issue still... and it SUCKS!! Sometimes he eats and sometimes he don't it just depends on his mood!! He still wants a Tractor for Christmas. Santa has like EVERY Tractor that he could make!! Santa is busy!! LOL
This Friday Max has a Dentist Appointment.... thats going to be real fun! I've never taken a child to the Dentist before, I've taken him to the Doctors but not the Dentist. But he needs to be seen, he is 2 years old now. So I hope he does good. Next Thursday Dec 10 Max goes for a EUA (Evaluation Under Anestheisa) Thats always fun too, NOT!! He gets his Eye Dialated and he don't like it one bit, but he does good. And I like these, because he gets them only every 6 months!! I wished his MRI's were like that, but his next MRI is in Feb 2010. It seems like a long time but it won't be!
So I'm going to go to bed now... I'm tired! As Max would say..... "nit" not night "nit"! .)
So anyway, as Friday went on and on and on..... We had not heard from my in-laws and so my husband called them and they were at VA (Vetrans Affairs) The Hospital in Nashville for my Father-in-law he has been having some "arm pains and shortness of breathe" for about a month and a half. So they took him over there to get him checked out. We he had a Heart Attack while Shopping on Black Friday! We they didn't do anything to him until Monday and they just put a stent in him, and now he is home!! What a blessing it is to have him here with us.... That was close... too close to home!! We can't live with-out Max's Papa!!! xoxoxox
So everything is going good for now and we still need to finish our Christmas Shopping! And I am getting Max's Pictures taken soon. And just hang out with Papa... Max is getting so big and so much fun. He is talking a bit more and putting sentences together a little, mostly he uses Charades with us.... but he does talk more. Eating is a big issue still... and it SUCKS!! Sometimes he eats and sometimes he don't it just depends on his mood!! He still wants a Tractor for Christmas. Santa has like EVERY Tractor that he could make!! Santa is busy!! LOL
This Friday Max has a Dentist Appointment.... thats going to be real fun! I've never taken a child to the Dentist before, I've taken him to the Doctors but not the Dentist. But he needs to be seen, he is 2 years old now. So I hope he does good. Next Thursday Dec 10 Max goes for a EUA (Evaluation Under Anestheisa) Thats always fun too, NOT!! He gets his Eye Dialated and he don't like it one bit, but he does good. And I like these, because he gets them only every 6 months!! I wished his MRI's were like that, but his next MRI is in Feb 2010. It seems like a long time but it won't be!
So I'm going to go to bed now... I'm tired! As Max would say..... "nit" not night "nit"! .)
Tuesday, November 24, 2009
Hey you!!!!!!!!!!!
Hey Bloggers........ PLEASE Sign up for the Blogfrog.... at the right of my blog..... I want to be COOL like my cousin Mindy!!!!! I'm Lame I know, but I wat to be cool... So Sign up for it!!
A Doll, a Baby Doll....
HaHaHa.... I told Max that IF he is not good until Christmas, Santa would bring him a Baby Doll... so now everytime he is "naughty" I say, "Your gonna get a Baby Doll" from Santa instead of your John Deere Tractor!! So today we were getting our hair cuts and they girl asked Max what he was getting for Christmas.... he told her he was getting a Baby Doll!!! So I guess Santa will have to leave him a Baby Doll, so he won't be let down... Any Suggestions on which Baby Doll???
Monday, November 23, 2009
To be more Clear... about Max's MRI Result......
Hello, and Happy Thanksgiving Week!! So I thought I would write what the Doctor has said to me... or given me in the MRI report. As many have e-mailed me and asked me.... I guess I didn't very well explain it. Findings: No restricted diffusion is seen. The patients udnergone a left enucleation. Stable subtle stranding is noted within the intraconal fat. The Prosthesis is normally positioned. No abnormal enhancement is noted within the optic chiasm or optic tracks to suggest recurrece. No extra axial masses or collections are identified. The 4th venntricle is normal in size and is in the midline, the 3rd and lateral ventricles are normal in size, shape and configuration. The cerebral, cerebellar and brainstem parenchyma demonstrate normal signal characterisitic. No untoward areas of enhancement are identified. The dural sinuses are intact, flow void is seen within the basilar and carotid arteries at the level of the cavernous sinuses. The cavernous sinuses are grossly normal. The pituitary glad in normal in signal, as the optic chiasm. The paranasal sinuses are clear.Of note, there is a rim enhancing, T2 hyerintensity adjacent to the right sphenoid that likely represents an opacified air cell in connection with the sphenoid. Since this lesion had progressively increased in size in the comparison to multiple prior studies close follow-up with MRI is recommended in 3 months.1. Stable postoperactive changes after the left enucleation without evidence of recurrance.2. T2 hyperintense lesion within the right sphenoid, likely representing mucus within the aerated sphenoid wing. However, since this lesion had increased in size in comparison to mutiple proirs progressively, close follow-up at 3 months is recommended. Vanderbilt University Medical Center. So Thats what Max has, did I put it any clearer.... The way Miss Tara talked like was he just has Mucus build up in his sinus. She asked if he had headaches, how do you know if your 2 year old has a headache?? Anyway-- I have to go now, Max is jumping on my bed and he's gonna fall off.... No more Monkey's jumping on the bed!!
Saturday, November 21, 2009
A Wonderful Beautiful Day For A Parade.....
OK, So if my laptop wasn't such a "guy" and stop being so SLOWWWW I would upload some pictures on here of the Christmas Parade. Max was so much fun. We took him to the Parade today and he had fun. We went with Melissa, Chris, Kaitlynn and Zack. And Papa and Nany and Mama. They all thought Max would get scared at the Parade with the Sirens Blowing and big crowds.... Heck NO He loved it. He loves the Fire Engines, and Police Cars, and most of all the Tractors!!! And they all thaough he would get scared of Santa... after the Parade we walked up to the Square and just walked around. Well, I seen Santa walking around... Soooooo I asked Max if who that was, and Max said.... "ho ho ho" and "tractor". I asked Santa if he would mind posing for a picture with Max and he said "Not at all" so I lifted Max out of the Stroller and into Santa's Arms, I was expecting Max to cry, as most 2 year olds do! NOT Max, he sat right up there and just looked around, I have pictures but they are really hard to upload on here, thats why there is only 1 picture! hahaha
So anyway, lately I have been teasing Max about being good for Santa. And I tell Max he is goin to get a "baby doll" if he is NOT nice! And he usually says "tractor" But today when I did it, Max said he WAS gettin a "baby doll'' from Santa. ohhh gosh.... back to Tractors. You can ask him what he is getting from Santa, and sometimes he will say "baby doll" or "tractor" its so fun! I love his little giggle and how he raises him eyebrows when he shakes his head "yes". He gets that from his daddy. We, Max and I are goin to get our haircut on Tuesday. I thought we might look nice with haircuts for Thanksgiving. I'm getting shaggy and Max, I missed a whole big spot on his top when I cut it last time, so I think I just might have to not do it anymore, so it looks nice. hahaha Well, I am just ramblin now, I'm tired and so I must go to bed now... night night soon I'll be snoring.......
So anyway, lately I have been teasing Max about being good for Santa. And I tell Max he is goin to get a "baby doll" if he is NOT nice! And he usually says "tractor" But today when I did it, Max said he WAS gettin a "baby doll'' from Santa. ohhh gosh.... back to Tractors. You can ask him what he is getting from Santa, and sometimes he will say "baby doll" or "tractor" its so fun! I love his little giggle and how he raises him eyebrows when he shakes his head "yes". He gets that from his daddy. We, Max and I are goin to get our haircut on Tuesday. I thought we might look nice with haircuts for Thanksgiving. I'm getting shaggy and Max, I missed a whole big spot on his top when I cut it last time, so I think I just might have to not do it anymore, so it looks nice. hahaha Well, I am just ramblin now, I'm tired and so I must go to bed now... night night soon I'll be snoring.......
Thursday, November 19, 2009
The Hockey Game.... We WON!!!
Ok, so I wouldn't think I would like Hockey.... But being married to a HOCKEY NUT... its kinda hard not to like it. I do like it!! And the first year I lived in Tennessee my fiance` had Season Tickets. And we went to the Games. But as the years went by, and money was tight, we only went to a few games a year, and now.... We go to games monthly. Courtesy of our "friend" who works with the Nasvhille Predators. We have AWESOME Seats, 1o rows back from the ICE!! WHOO HOO.... but its so cold! But I love it, and little Max loves it too. He thinks that Hockey is the BEST, he started likeing it at 4 months old, we would sit him in front of the TV and he would watch it. So when we got the chance to take him to a Hockey Game, we went!! Awesome! But I had told our "friend" we wanted some tickets to a game and to see what she could do. Mind you..... these tickets are DONATED from Our Nashville Predators Players. So she don't "actually" give them to us, I'm to thankful for the Guys on the ICE for doing this, it is such a happy feeling to look over and see Max Smiling to BIG because there are guys out there hitting the puck and falling down, and having a good time while we watch them. IF they could see Max's BIG Smile. I am thankful for them and giving Max a oppurtunity to see them. So anyway-- Nashville did win 4-3 against San Jose Sharks!
A few weeks ago at the "Hockey Fights Cancer" Game we went to, I wanted to stop by the Auction table and buy a "Cancer Braclet" you know the "arm bands or braclets in a specific color" like the Lance Armstrong Braclets, anyway I wanted one of them, but I didn't get the chance to get one. So this last Hockey game I went to blow my nose and the bathroom is just right behind the auction table so I strolled by the table and asked how much the braclets were, and the Man said they were $1.00 so I told him I wanted one because my little 2 year old baby boy HAD Cancer when he was 8 months old. So he just handed me a braclet.... and Smiled at me! And I tried to give him the dollar and he wouldn't take it. I don't want to "faunt" that Max had Cancer, but I don't and won't keep it a secret. But I won't be pitty to someone either, like some people are, they let their childs Cancer get to their heads and will take advantage of people. I just think that is so sad. But I will not, if you want to help thats fine, but I will not burden anyone, and will not be "asking" anyone for anything! Thats just me!
So, anyway... I'm tired and I must go to bed, Max had Speech Therapy in the Morning.
A few weeks ago at the "Hockey Fights Cancer" Game we went to, I wanted to stop by the Auction table and buy a "Cancer Braclet" you know the "arm bands or braclets in a specific color" like the Lance Armstrong Braclets, anyway I wanted one of them, but I didn't get the chance to get one. So this last Hockey game I went to blow my nose and the bathroom is just right behind the auction table so I strolled by the table and asked how much the braclets were, and the Man said they were $1.00 so I told him I wanted one because my little 2 year old baby boy HAD Cancer when he was 8 months old. So he just handed me a braclet.... and Smiled at me! And I tried to give him the dollar and he wouldn't take it. I don't want to "faunt" that Max had Cancer, but I don't and won't keep it a secret. But I won't be pitty to someone either, like some people are, they let their childs Cancer get to their heads and will take advantage of people. I just think that is so sad. But I will not, if you want to help thats fine, but I will not burden anyone, and will not be "asking" anyone for anything! Thats just me!
So, anyway... I'm tired and I must go to bed, Max had Speech Therapy in the Morning.
Monday, November 16, 2009
MRI Results....
Well, The MRI results are good, and there is NO recurrance of Cancer.... BUT... There is a spot in Max's Nasal Cavity above his Right Eye (The GOOD Eye). So they think it is a Mucus Blockage and it has got bigger since the last MRI in August 09. SO that is where we stand now. There was and still is a possibility that the Chemotherapy "could" contribute to secondary Cancer, Bone Cancer or some other sort. That was the only Possibility we had, but they seem to think that this is all it is! I was so HAPPY to hear that the MRI Results were clean, but that don't mean we are out of the woods yet, we still have to get past the 4 1/2 year mark. So we have been sent papers on the Survivorship Program at Vanderbilt.
Anyway, we got tickets to the Predators Game tomarrow night. My "person" got us tickets to the game, and she usually gets us GREAT Seats too. GOOOO Predators!! Well, I am tired and I'm goin to bed now... Good Night!!
P.S.
I am trying to take Max off the Bottle at night, which isn't working. But he is off his binkie now!!
Anyway, we got tickets to the Predators Game tomarrow night. My "person" got us tickets to the game, and she usually gets us GREAT Seats too. GOOOO Predators!! Well, I am tired and I'm goin to bed now... Good Night!!
P.S.
I am trying to take Max off the Bottle at night, which isn't working. But he is off his binkie now!!
Monday and A Doctor Visit.....
OK, so its Monday Morning at 6:19am! Max has a Appointment with his Oncologist Dr. Kuttesch at Vanderbilt Childrens Hospital, at 1:00pm today. Just to get the results of last Thursday's MRI. Which we think that it will be a clean MRI and he will now be able to go every 6 months for MRI's now, but the older he gets that harder it will be. Man.... did we have a hard time getting him a IV in!! Whooaa....... They had to give him Versaid, which is a nasal mist to calm him down, that worked for a bit, but then he was bad. LOL If I could have did it for him I would have! Poor little guy!!
So they finally got the IV in him hand, but by the time we got to the MRI room he had pulled it loose from his hand and they couldn't give him meds through it. So there Max was laying on the MRI table and with out a IV in, so they ended up just IVing him in his foot and then taping it inplace while he was out!! So next time they told us to make sure he is goin to get a MRI to get him to come on Monday... they can Gas him. He has had Gas one time to be put to sleep, that was the time they could NOT find a vein... and they stuck him like 17 times! Thank Goodness for Pedia-Ports!!
Anyway, Max's Papa had a Doc Appointment this moring also, so today to Doc Day!! LOL
So, anyway... I shall post later today on Max's MRI results and Doc Appointments. We have decided on a name for the Puppy.... well on a few names for the puppy.... Belle, J.D., (John Deere) and Gnash (Predators Mascot). So I don't know just yet! I have to go now, that danged puppy is howling....
So they finally got the IV in him hand, but by the time we got to the MRI room he had pulled it loose from his hand and they couldn't give him meds through it. So there Max was laying on the MRI table and with out a IV in, so they ended up just IVing him in his foot and then taping it inplace while he was out!! So next time they told us to make sure he is goin to get a MRI to get him to come on Monday... they can Gas him. He has had Gas one time to be put to sleep, that was the time they could NOT find a vein... and they stuck him like 17 times! Thank Goodness for Pedia-Ports!!
Anyway, Max's Papa had a Doc Appointment this moring also, so today to Doc Day!! LOL
So, anyway... I shall post later today on Max's MRI results and Doc Appointments. We have decided on a name for the Puppy.... well on a few names for the puppy.... Belle, J.D., (John Deere) and Gnash (Predators Mascot). So I don't know just yet! I have to go now, that danged puppy is howling....
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